10.29.2008

Some Scary News

Paul and I spent yesterday driving up to SLC for a couple of appointments and then coming back (a 5 hour drive each way for us). The first was his MRI and the second his regular follow up with the neurologist. What we found was a little bit scary. His MS is progressing right now. If you remember back in April I think I wrote about the relapse he was having, how he couldn't feel his legs very well and had to get a kind of emergency treatment (3 IV treatments over 3 days to help stop the inflammation in his brain). We found out a couple months later that he had a new lesion in his brain from that relapse.

Well he's been having a hard time and we found out why from the new MRI. He has another new lesion in his brain in addition to the one they found 5 months ago and his MS is active again. His neurologist is putting him on injection medication. We're trying Rebif and hopefully he won't have a bad reaction to it like the others he's been on. It's a subcutaneous injection 3 times a week and I am praying that it will help. He's been having such a hard time and every day it seems to get harder for him. To top it all off he needs to have a root canal and an extraction (which we have to pay for since we don't have dental insurance). So not only are we both stressed about what's going on with his MS, we are worried about this dental bill.

Needless to say I'm scared. We talked about what we would do if he wasn't physically able to work after getting his degree, the plans I had for going back to school, what we'd both have to do about jobs, budgeting over the next few months for his dental work, etc. We agreed, even if he has to take it slow, for him to finish getting his bachelors since he's worked so hard and is getting close now. I still won't be able to go back to school until the kids are both in grade school but I wonder if worse comes to worse, if I'll be able to handle working and trying to go to school, yet still be there for my girls and Paul. With Caitlyn's PDD and Paul's MS I just feel so frightened and worried for the future right now. I know everything works out in the end, I'm just having a hard time seeing that right now. I usually try to not post about this kind of stuff. I know most of you come for the art, but thanks for reading this. For some strange reason it helps me to get over feeling down and be mentally able to tackle those challenges ahead. All the art I post lately has been previously scheduled, so at least I don't have to worry about that, lol. Thanks for stopping by! Hugs to all my readers out there!

19 comments:

pat said...

Marjorie,
My thoughts and prayers are with you and your family.
Thanks for sharing your news...I believe in the power of prayer...so the more people read this and pray the better.
Lots of hugs to you.
Pat

Sparkle said...

Hugs to you sweetie! Just know you and your family are in my thoughts! Lots of love all around you!

And thank you for my card and images! And for the fam advice. :)

Lori said...

Marjorie,
I am so sorry that you and your family are going through this. All that you can do is take it one day at a time. God will get your through. Just remember "He will never leave you, Nor forsake you. No matter what". I went back to school when my kids were young. I took it slowly, one or two classes at at time. And,with God's help I got my degree. You can do it. And, God will help you. I will keep you and your family in my prayers. Here's a hug for you.
XXXXXXXXXXXXXXXX
Lori

Jennifer Hodge said...

I just want to give you a huge cyber {hug}! I have an Uncle dealing with MS and it is scary! I do believe that you would be able to handle school, work and kids as I did it as a single mother (not saying you would be). Please know that our family is praying for you and God never puts more on your plate than you can handle! Please keep us updated!

Tiff said...

Your family is in my deepest thoughts and prayers...

Sandra T. said...

Lots of prayers for your family!! God is good!

Giffysk8s said...

Oh, Marjorie~Somehow, I didn't know about your DH or DD. Please let me offer my most sincere sympathies, as well as a big hug from across the miles. Your family will absolutely be in my prayers. And please post these things as much as you want~you KNOW that there are many of us out here who love you and want to support you.

Lori said...

Marjorie,
There is one other thing that I forgot to mention. Your husband definitely needs to finish his education so that he can get a good job with benefits to take care of you and the kids, should anything happen. I'm not saying that it will, but just to be on the safe side.
Hugs,
Lori

ScrapyTiff said...

Lots of hugs and prayers coming your way! :o) Hope you all pull through and know that we are all here for you!

Mommy Poulsen said...

You and your family will be in my prays. Keep up the hope!

Mommy Poulsen said...

http://adailyscoop.blogspot.com/2008/10/are-we-there-yet.html

Forgot to add the above web address. Go read her blog. It might help you.

We are the Moses tribe. said...

Marjorie, I'm sorry to hear about all the problems and challenges facing your family. I know that our Heavenly Father does have a plan for each of us and that sometimes, it includes bumpy roads. It's still no fun though and I wish you all the very best.

scrappin' happy said...

Lots of Hugs and you and your family are in my prayers. Take care!

Alyssa Walters said...

Marjorie, you and Paul and the girls are in my prayers. God is amazing, and in my personal experience, just when you wonder where something is going to come from (i.e. money to pay for that dental bill), He somehow provides it in some way. Talk to the dentist -- see if they can do a payment plan, or knock some $$ off for lack of insurance. I've never met you, but I'll be thinking of you -- sending cyberhugs your way. And a smile. :)

Jenn said...

I'm praying for you and your family too. Things can be really scary especially when we don't know what the future holds for us. If you get a moment to look up a couple of bible verses, check out Matthew 6:25-34. These have been very encouraging and comforting to me and my family very recently, and I hope they are a blessing to you and your family as well.

Hugs, Jenn Gautier

jami said...

I'm very sorry to hear your having a hard time:( Try not to get caught up in the tomorrows. Just take it one day at a time. When we feel like our plans in life are totally ruined, they turn out better then we could have ever hoped:) Huge Hugs!

Stacy said...

Oh Marjorie, I've been a little MIA lately, so I just saw this post. You have a lot on your plate right now. Just want you to know I am thinking about you!!!

Seleise said...

Hugs Marjorie! I can't imagine what that's like but the good thing is that you've got a supportive loving family and together you'll get through whatever life throws at you. I'm glad you shared your story and good luck as you figure out your next step.

judy anderson said...

Beenthinking about you since you posted and wanted to have an idea as well as prayers. You might check out online college classes for you. Just a thought.